Ulrich has been battling Neuroblastoma since birth.

At 10 years old, he’s faced seven rounds of treatment — chemotherapy, surgeries, radiation, immunotherapy, and clinical trials — yet the cancer keeps returning.
Recently, scans revealed the tumor is spreading toward his heart and spine, causing pain and fevers.
Chemotherapy is no longer working, and surgery has become complicated and risky.
If removal isn’t possible, the family may have to focus on comfort care, keeping him pain-free in his final days.

Despite everything, Ulrich…
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Ulrich has never known a life without hospitals.

Since the moment he was born, his world has been a cycle of white walls, blinking machines, and whispered prayers.
While most children his age were learning to ride bikes or build forts, Ulrich was learning how to endure — how to breathe through pain, how to smile through fear, how to keep living when every day felt like a battle.

He was born with Neuroblastoma, a rare and aggressive form of childhood cancer that attacks immature nerve cells.
At just a few days old, his tiny body was already covered in tubes and monitors.

Doctors told his mother that his cancer was stage 4 — high risk, and that a full recovery was unlikely.

Most infants wouldn’t survive the first year.
But Ulrich wasn’t “most infants.”

He fought.

For ten years now, he has been fighting.
Through surgeries that left scars across his small frame.
Through rounds of chemotherapy that burned through his veins.

Through radiation and immunotherapy sessions that seemed endless.

Each time, the family would hold their breath, praying for those precious words — “no evidence of disease.”
And for a while, sometimes a year, sometimes two, Ulrich would get to just be a child again.

But the cancer always came back.

Every return felt crueler than the last.
Each time, the doctors grew more hesitant, the treatments more experimental, the chances slimmer.

And yet, Ulrich’s spirit never broke.

Even as the disease took pieces of his body and time from his childhood, it could never take his light.

Recently, his fight reached a new and heartbreaking chapter.

After being admitted to the hospital with high fevers and unbearable pain, Ulrich’s scans revealed the truth his parents dreaded — the tumor was growing again.

This time, it had spread toward his heart and spine, wrapping around vital nerves and vessels like a dark vine.

The fevers weren’t from infection.
They were from the tumor itself.

His mother sat beside his bed that night, holding his hand, whispering promises she wasn’t sure she could keep.

He was discharged a week later, his pain somewhat under control.

But the news lingered heavy in the room — the disease had progressed.
Chemotherapy had stopped working.

Continuing it, the doctors said, would do more harm than good.
“It could kill him faster than the cancer will,” one physician said softly.

Now, the family is waiting for a consultation at MSK in New York.
There’s a chance — a small, fragile chance — that surgeons might be able to remove the tumor.

But it’s risky.
Too close to his heart, too near his spine.

One wrong move, one misstep, and Ulrich might not wake up.
His mother knows this, but she also knows what it means to live without trying.

So she keeps hoping.

Ulrich’s life has never been easy, but it has always been full — full of love, of laughter between treatments, of the small joys that make the pain bearable.

He has a favorite blanket, soft and worn at the edges, that he insists on bringing to every hospital stay.

He has siblings who wait for him at home, making drawings and cards that fill his room with color.

He has a dog that curls at his feet whenever he’s too weak to play.

But even the strongest fighters grow tired.
And now, as Ulrich faces his seventh battle

, the family knows that this one is different.

The word “uncurable” has been whispered more than once.
Doctors have begun to talk about comfort care — keeping him pain-free, making sure his days are filled with peace instead of procedures.

His mother can barely say the words aloud.

Since his diagnosis, she hasn’t been able to keep a steady job.
Every time Ulrich relapsed, she left work to sit by his side, sleeping in chairs, eating hospital food, praying over every test result.

Her world has become his — every decision, every sacrifice, every breath.
She has learned to read his pain from the way his hands twitch, the way his eyes close mid-sentence, the way his small chest rises with effort.

And still, she refuses to give up.

There’s talk of a new clinical trial out of state — one that might offer a small sliver of hope.
But it would require traveling across the country, and the insurance may not cover it.

They’re already stretched thin, balancing treatment at two hospitals, paying for travel, medication, and daily needs.
Every bill feels like another weight on an already fragile heart.

But she doesn’t think about money when she looks at him.
She thinks about time.

How many more days she might get to hear his laugh.
How many more mornings she’ll wake to see his eyelashes fluttering in the light.
How many more “I love you, Mom” whispers she’ll collect before silence takes over.

Sometimes Ulrich asks if he’s getting better.
And his mother smiles — a soft, trembling smile — and says, “We’re trying, sweetheart.”
Because she doesn’t know how to tell him that medicine is running out of answers.

He has endured more than any ten-year-old should.
The chemo has burned his veins.
The radiation has weakened his bones.

He’s suffered bowel obstructions, fevers, nosebleeds, and countless nights of pain.

And yet, he still laughs when his siblings tell him stories.
He still says “thank you” to every nurse.
He still asks the doctors how their day is going.

That’s who Ulrich is — a boy who meets cruelty with kindness, pain with grace, and fear with faith.

His family has learned to live one day at a time.
There are no guarantees anymore.
No promises of remission.

Just moments — small, fragile, infinitely precious moments.
A hand squeeze.
A whispered prayer.
A night where the fever doesn’t come.

They know the road ahead will be hard.
If the surgeons can’t remove the tumor, they’ll shift to comfort care — focusing on keeping him out of pain, surrounded by love.
No more harsh treatments.

No more endless needles and hospital stays.
Just peace.
Just home.

And though that thought breaks his mother’s heart, it also gives her strength.
Because she knows that even if a cure never comes, Ulrich’s life has mattered — deeply, profoundly, beautifully.

He has changed everyone who’s ever met him.
He has reminded them what real courage looks like.
He has shown the world that even in a body broken by disease, there can still live a soul full of light.

They’re running out of options.
They’re running out of time.
But they will never run out of love.

As his mother sits beside his bed tonight, stroking his hair as he drifts to sleep, she whispers, “You’ve done enough, my brave boy. You’ve fought so hard. And no matter what happens next, I’ll always be proud of you.”

And somewhere in that quiet room, between the hum of machines and the rhythm of his breath, hope lingers — fragile but alive.
Because where there is love, there is always something left to fight for.